Aura Flo

I wanted to share why i set up this group, and why sometimes I'm not very active in
NHS–Feedback and accountability

So here it is...

In 2022, I became seriously unwell.
In 2026, I’m still waiting for the referrals and answers I should have received.

What started as septic arthritis — a treatable infection — turned into chronic osteomyelitis, destroying my bones, twisting my posture, and misaligning my entire body. My pelvis is tilted. My spine sways. My back is twisted from top to bottom. My body has been consumed by the consequences of delay and mismanagement.

I have gone from struggling to walk one day and going to an emergency department, to being so bad 3 years later i can't even push a self propelled wheelchair safely. I just had a driving test for an electric one under the NHS. The worst kind of consequences anyone can ever imagine..being confined to a mechanical chair / bed.

I trusted the system. I asked for help. I had a CRP of 500 but until that was discovered 8 days later. I was dismissed. The early signs were ignored. My own instincts that the pain was bone infection related were dismissed.. And the cost has been everything... my mobility, my independence, my health.

My children have learned the hardest lesson of all. Do not trust people who are there to help.
At an age when they should feel safe, they’ve seen the system fail me us in so many ways..

My daughter won’t take antibiotics believing they may not be needed. After all– they didnt even give my mum antibiotics when she really did need them..
She avoids doctors, even when her body is in pain and showing distress – she suffers instead allowing other parts of her life to be affected. Self destruction wrapped up in a misunderstanding of social care.
She is being punished at school because her health sometimes prevents her attending– something they hage made bo attempt to understand and believe she doesnt try, putting the blame all back into her lap. Any body of educated people would understand– if they simply tried to.

She has said things that break me — that maybe I would have been better off letting the infection take its course ( i wouldn't be here today, she is barely 16 years old and not even my youngest). But at least she would remember me strong and capable. Instead, she saw her mum ignored, stigmatised, and dismissed. Im only 37 after all.....

I feel alone in this but the logical part of me knows I'm not. And since looking into other people's experiences I have seen things are going badly far to often.

If this sounds scarily similar to something youve been through, this can be any situation where a governing body have affected you, your kids and their wellbeing, by not caring enough to carry out simple duties of care causing you to suffer the consequences – then this page exists for you..
Anyone who has been unheard, dismissed, or let down by healthcare or social care. Share your story. Speak your truth. Together, we make sure these failures are seen, acknowledged, and remembered.

Please invite anyone who may benefit from a safe place to get/give advice about treatments,
Know about or need advice with the legal stuff we are expected to navigate when it all goes wrong, or just be in need of somewhere to vent to other caring understanding and experienced individuals.
This group is intended to be just that but without members it wont go far.

Please head over & support our group to get It of the ground, before more lives are avoidably ruined.

NHS – Feedback & Accountability

Have an amazing day you beautiful, worthy humans.
❤️🙏😊

Aura Flo Digital creator

Think I'm sorted.. for about a week anyway 🫣
hows every one's food shopping going?

Yankee Advent Calender day 21.
Spiced Banana bread ✨️🕯

Sweet with a beautiful depth to it..smells like walking into a home where something yummy is baking
Lovely & a new favourite of mine 💛

🎄🔗👇👇

It’s easy to step out of festive photos when you’re tired, stretched thin, or not feeling like yourself. But one day, the people who love you will look for those moments. They won’t be searching for how you looked — they’ll be searching for you.

Those photos will become priceless, not because everything was perfect, but because you were there. Your presence, exactly as it was, will be the gift they needed.

Take the photo. It isn’t for you 💕