The True Long Hauler Journey

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Hey, I got my results from my biopsy. It is PASH (pseudoangiomatous stromal hyperplasia), a condition, not cancer. It is rare; 1%-2% of patients have a lump that grows or isn’t microscopic. It's caused by the synthetic hormones I take after my hysterectomy. Of course, it's rare, and I get it lol

The first picture is 6 months ago
Second if my 6 month check up
It grew from 3 to 6

I had an appointment at Walker Heart with Electrophysiologist Dr.B. He can’t increase my heart meds due to my heart rate getting so slow. He is concerned if he did what my heart rate would be while I was sleeping. Nothing to be down for my AFib and tachycardia or bradycardia at this time.
He said you should be back to normal in a decade. I’m in 5 years with long covid I have 5 more years to go to see if there is a normal health again.

I'm waiting to be called for my biopsy on a spot they found 6 months ago that has grown bigger over the past 6 months.

I’m healing Gradually from my surgery. My back is still pretty sore and still can’t bend , twist or lift anything heavier then 5 lbs

I had a challenging spinal cord stimulator procedure, but I'm recovering well. My post-op appointment went smoothly today , and the doctor removed 22 staples and bandages. I'll share pictures in the comments. Trigger Warning.

My recovery has been good. I’m still having pretty bad procedural pain from my surgery. I’m hoping it gets better in the weeks to come.


I’m still having my normal symptoms along with recovering
❤️‍🩹 insomnia
Inflammation
Joint pain
Swelling
Heart palpitations
High heart rate
Low heart rate
Constant cough
And many more

With long covid

My morning routine now is to take a heart pill, my breathing inhaler Spriva, and a prescription nose spray. At night, I take another heart pill, progesterone, and amitriptyline. I have a visible band that tracks my heart all through the day.